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1.
J Hosp Palliat Nurs ; 25(1): 24-30, 2023 02 01.
Artigo em Inglês | MEDLINE | ID: mdl-36622312

RESUMO

Over 4 decades, short- and long-term survival for children with congenital heart disease (CHD) has significantly increased. Those with complex CHD have a 1-year mortality rate of approximately 25%. Prenatal access to palliative care ensures a comprehensive approach to the infant's physical, emotional, spiritual, and psychosocial well-being and offers enhanced support for parents and families while providing an interprofessional approach to care. Pediatric cardiac provider attitudes, knowledge, patterns of prenatal palliative care, and consultation for fetuses with complex heart disease to guide increased and appropriate prenatal consultation were explored for a quality improvement project completed at a single institution. A retrospective cardiac database review identified that 21.5% of maternal patients seen prenatally and carrying a fetus with complex CHD would have qualified for prenatal palliative care consultation. To increase prenatal palliative care consultation, a pathway for referral was developed. A pre-evaluation of pediatric cardiac provider attitudes regarding palliative care was measured. Survey data informed the intervention phase of prenatal palliative care educational material development, which was presented to pediatric cardiac providers. The number of prenatal palliative care consults was tracked. A postintervention survey completed by pediatric cardiac providers showed increased understanding and utilization of palliative care for comfort and support and not just reserved for death preparation. Greater than 93% agreed or strongly agreed that they gained a better understanding of appropriate use of palliative/supportive care. As pediatric cardiac providers become more knowledgeable about early integration of palliative care, parents and infants will benefit greatly from referrals and initiation of palliative care at the time of prenatal diagnosis.


Assuntos
Cardiopatias Congênitas , Cuidados Paliativos , Lactente , Gravidez , Feminino , Humanos , Criança , Cuidados Paliativos/psicologia , Estudos Retrospectivos , Cardiopatias Congênitas/terapia , Cardiopatias Congênitas/diagnóstico , Pais/psicologia , Encaminhamento e Consulta
2.
J Pediatr Health Care ; 36(3): 218-224, 2022.
Artigo em Inglês | MEDLINE | ID: mdl-34776326

RESUMO

INTRODUCTION: Health literacy is a nationwide public health concern. Low health literacy in adolescents is related to increased adolescent high-risk behaviors, which can negatively affect their overall health. METHOD: A quality improvement health literacy project was developed, implemented, and evaluated in a juvenile temporary detention center. Stakeholders identified pertinent health-related topics for discussion, including female body anatomy, sexual health, consent, pornography, sex trafficking, smoking, and anger management. Toolkits and pretest/posttest questionnaires guided weekly group sessions. Youth engaged in content during each session. RESULTS: Group health literacy scores were examined to evaluate the program. Group comments were debriefed by facilitators after each session; 119 youth residents participated. Positive increases in health literacy and health knowledge were observed in all sessions for all groups. DISCUSSION: Interactive health education programs for incarcerated youth can improve their health literacy and health knowledge and begin a path to decrease health inequities in this vulnerable population.


Assuntos
Letramento em Saúde , Saúde Sexual , Adolescente , Literatura Erótica , Feminino , Educação em Saúde , Humanos , Prisões Locais
3.
J Pediatr Oncol Nurs ; 34(5): 315-321, 2017.
Artigo em Inglês | MEDLINE | ID: mdl-28812473

RESUMO

Fever and neutropenia is an oncologic emergency. Time-to-antibiotics (TTA) refers to the amount of time from initial provider evaluation for fever and neutropenia to intravenous antibiotic administration. Research supports that rapid time-to-antibiotics (RTTA) is associated with improved patient outcomes. This quality improvement project evaluated the success of implementing an RTTA pathway in pediatric oncology patients with fever and neutropenia. The setting was an advanced practice nurse-managed pediatric ambulatory infusion center where patients with fever and neutropenia were often evaluated and treated. In order to improve TTA, a multidisciplinary pathway was implemented with a goal of TTA that was less than 60 minutes from initial provider evaluation. Implementation of the RTTA pathway included discussion of shared expectations with the pharmacy and education departments and discussion of shared expectations with the bedside nurses and advanced practice nurses staffing the unit. Additionally, a preliminary lab test was utilized. Success of the implementation was evaluated through 2 measures: TTA and nurses' knowledge of fever and neutropenia and the importance of RTTA. The aims of this project were to improve TTA as well as nurses' knowledge of fever and neutropenia and the importance of RTTA, and both these aims were successfully attained.


Assuntos
Antibacterianos/administração & dosagem , Neutropenia Febril Induzida por Quimioterapia/tratamento farmacológico , Neoplasias/enfermagem , Processo de Enfermagem , Centros Médicos Acadêmicos , Adolescente , Neutropenia Febril Induzida por Quimioterapia/complicações , Neutropenia Febril Induzida por Quimioterapia/enfermagem , Criança , Pré-Escolar , Procedimentos Clínicos , Esquema de Medicação , Feminino , Humanos , Lactente , Recém-Nascido , Masculino , Neoplasias/complicações , Enfermagem Pediátrica , Melhoria de Qualidade
4.
J Foot Ankle Surg ; 42(4): 193-8, 2003.
Artigo em Inglês | MEDLINE | ID: mdl-12907929

RESUMO

Malignant melanoma is increasing at a rate faster than any other cancer in the United States. Location of the primary tumor on the foot is associated with poorer prognosis. This study evaluates a cohort of 148 patients with melanoma of the lower extremity (37 foot or ankle and 111 leg, knee, or thigh) diagnosed at a university medical center during a 32-year period. The mean follow-up for the foot/ankle patients was 44 months. The overall 5-year survival rate was 52% for patients with a primary melanoma of the foot/ankle compared with 84% for patients with a primary melanoma elsewhere on the lower extremity. Although the study period extended over 32 years, nearly 65% of the foot/ankle patients were diagnosed in the last decade. This increase is most likely because of the documented increase in incidence of melanoma in the United States and an increasing referral pattern at our institution.


Assuntos
Doenças do Pé/mortalidade , Melanoma/mortalidade , Neoplasias Cutâneas/mortalidade , Adulto , Idoso , Idoso de 80 Anos ou mais , Tornozelo , Estudos de Coortes , Feminino , Doenças do Pé/diagnóstico , Humanos , Perna (Membro) , Masculino , Melanoma/diagnóstico , Pessoa de Meia-Idade , Prognóstico , Neoplasias Cutâneas/diagnóstico , Taxa de Sobrevida , Estados Unidos/epidemiologia
5.
Clin Podiatr Med Surg ; 19(4): 493-508, 2002 Oct.
Artigo em Inglês | MEDLINE | ID: mdl-12471857

RESUMO

Evidence at the scene of death and the postmortem examination led the pathologist to conclude suicide by intentional insulin overdose. The examination was conducted one day after the patient's death. The amount of insulin injected is not known, but levels of insulin in the vitreous gel were extremely high. While glucose and insulin are more stable in vitreous than in postmortem blood, the longer the delay between death and sample collection, the greater the uncertainty of the exact concentrations of substances at the time of death [42]. Patients with diabetes may have at their disposal the resources to end their lives; misuse of insulin and suicide by insulin overdose are presumably underreported events. Not only do diabetics have insulin available, but they may also have narcotics, tricyclic antidepressants or other drugs that are toxic at high doses. Even in the absence of depression, all patients with diabetes face multiple emotional issues related to the diagnosis and course of the disease. Diabetes often requires significant lifestyle changes, such as diet and physical activity, upon its diagnosis. Patients face the possibility of long-term, possibly debilitating, complications: vision loss, sexual dysfunction, and amputation. Any podiatrist who treats a large number of diabetic patients will encounter the situation of a patient at risk of losing a limb. A patient may consciously or unconsciously view amputation as punishment; limb loss interferes physically with bodily function and has extensive emotional consequences as well. It is important for patients to be involved with a healthcare team (including primary care physician, nurse educator, ophthalmologist, and podiatrist) that provides support throughout their lives [3]. As learned early on in podiatry school, podiatric physicians don't treat feet; they treat patients who have foot problems. It is as important to know when to refer a patient to the primary care physician or a psychiatrist for mental health complaints as it is to know when to refer a patient to an orthopedic surgeon for hip pain or to an ophthalmologist for vision problems. We do not propose that this patient's diabetic foot disease was the direct cause of his depression and suicide; however, the prevalence of depression in the general population and its even higher rates in patients with chronic medical illness require awareness of these problems by all members of the medical profession.


Assuntos
Depressão/complicações , Pé Diabético/psicologia , Suicídio , Doença Crônica , Depressão/diagnóstico , Pé Diabético/complicações , Pé Diabético/epidemiologia , Humanos , Masculino , Pessoa de Meia-Idade , Suicídio/psicologia , Suicídio/estatística & dados numéricos , Estados Unidos/epidemiologia
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